Survivor Stories

 

Your experiences with brain injury, whether you're a survivor or a caregiver, can be a source of hope, inspiration, and support for others. Each brain injury is a unique journey. But by sharing our experiences, we can find common ground and learn from one another. Your perspective is valuable, whether you're living with a brain injury, supporting a loved one, or working in a clinical setting.

Share your story with us here

Lynn and Tony Kesner: Our Journey

Collapse

My husband and I met on a blind date 22 years ago and have a blended family to include 3 boys and 4 grandkids. It felt like we were in honeymoon mode our entire marriage.  In 2020, Tony was diagnosed and underwent partial dissection of a 5cm meningioma.  Life as we knew it was no longer the same.  Tony was a corporate professional with a large salary we were counting on to build a solid retirement, and now, not only am I a full-time caregiver, but working full-time to build some sort of nest egg for the future.

He was in surgery for several hours, and post op could not move, talk, or see.  The surgery left him with deficits we had no idea were even a possibility.  After a month in the hospital, 2 months in rehab, and 2 additional health scares, he returned home in a wheelchair.  This amazing man has faced unimaginable loss, pain, and anxiety, but has overcome so much.  While he will never work again, Tony is now walking, talking, and can see despite the double vision in one eye.  He is continuing to fight to enjoy life.  After a round of radiation, he has seen no new growth of the remaining remnant of the tumor, and we are praying for this same report every 6 months, each time he has his MRI.  I think the thing he struggles with most is his inability to work due to balance and extreme fatigue issues, but he gets up every day and tries to help me in any way he can.

Maria Garcia: Breaking Into the Light – A Journey of Self-discovery and Transformation

Expand

Joe Voloski: Never Lose Hope

Expand

Beloved Muhammad: Rebuilding From the Inside Out – My Life After Traumatic Brain Injury

Expand

Phillip Barnes: Life is What Happens Every Day, Living is What We Choose to Do With It

Expand

David Van Aken: In His Own Words

Expand